Category Archives: Brain Stuff

I know I haven’t posted in awhile…

because not much has been happening. My latest MRI scan from Feb 25th showed that the tumor was still stable.  Doctor said, “see you in another 6 months.”    He also recommended cutting back on the clonazepam. As far as … Continue reading

Posted in Brain Stuff | 4 Comments

Latest MRI

Jamie and I drove up to the Huntsman again last week for my 3 month checkup and another MRI. I haven’t had a seizure since Sep 5th.  I’m almost at the 3 month mark which means I can legally start … Continue reading

Posted in Brain Stuff | 6 Comments

No More Chemo…

Jamie and I drove up to the hospital again today for my 6 week MRI and chat with my Oncologist.  I really didn’t expect much to be different, just the usual having to explain to the MRI techs that I … Continue reading

Posted in Brain Stuff | 5 Comments

Seizure Activity & Med Levels

I’m doing this post just so I can keep track of the seizures a med levels without having to hunt them down all the time. Seizures May 14th, 2014:  Not sure what caused this one other than I was a … Continue reading

Posted in Brain Stuff | Leave a comment

MRI results after round #4 of chemo

Round #4 of potentially 6 rounds is now over and done with.  And the results?…. Nothing! That is actually a good thing.  We can’t tell from the MRI if the tumor is alive or dead but it’s not growing, thank … Continue reading

Posted in Brain Stuff | 3 Comments

Just keep swimm’n

I’m about halfway through my 4th out of 6 rounds of chemo.  So far it hasn’t been too bad.  I just feel tired and blah most of the time. The seizures have died down but aren’t completely gone yet.  I … Continue reading

Posted in Brain Stuff | Leave a comment

A Quick Update

Met with my oncologist on Tuesday for a check-up after finishing the first chemo cycle.  They drew more blood for labs and while I feel good physically, the doctor is postponing my second cycle for a week. Apparently my white … Continue reading

Posted in Brain Stuff | 5 Comments

Bottoms up!

And so it begins… PCV Chemotherapy. I should say “began” since I actually already started on Oct 23rd. I’m scheduled for 6 cycles, with each cycle lasting about 6 weeks. On Oct 23rd, I downed 230mg on CCNU right before … Continue reading

Posted in Brain Stuff | 3 Comments

“Surprisingly Smaller”

Yesterday was my first MRI since July and the first one since my 6 weeks of daily radiation. The radiation or “brain bake” is now over thankfully.  By the way, it was very fun going with all my different friends … Continue reading

Posted in Brain Stuff | 7 Comments

Medication levels

Ok so I know I need to get off some of my meds, especially keppra. About mid August my doctor had me take a blood test to measure the keppra amounts in my blood.  Normal range is 5-30 micrograms/milliliter.  Mine … Continue reading

Posted in Brain Stuff | 3 Comments