Seizure Activity & Med Levels

I’m doing this post just so I can keep track of the seizures a med levels without having to hunt them down all the time.

Seizures

  • May 14th, 2014:  Not sure what caused this one other than I was a hour and a half late on my pm meds.
  • Jun 29th: I was about an hour late on my noon dose but that doesn’t usually affect anything.  Wasn’t as intense as the one on May 14th but was still quite painful.
  • Jul 23rd:  I kind of brought this one on myself.  We went to my son’s soccer tournament and it was over 100 degrees.  Sitting there baking in the sun must have fried my brain…, literally.
  • Aug 15th: Couple of hours before taking my PM meds I got on the treadmill to watch Batman while doing a brisk walk.  At around 32 minutes I seized up.  It hurt.  I felt like Batman when Bain was beating him up.
  • Sep 5th:  15 mins before taking my nightly meds I had a seizure.  The intensity wasn’t as bad as the previous several have been.  It did not go into my leg.
  • Dec 14th:  Well, like all good streaks this one eventually came to an end.  After a little over 3 months I had a pretty nasty seizure.  It wasn’t quite fair though.  I woke up early Sunday morning and made a mad dash to the porcelain throne and proceeded to puke my guts out.  I felt perfectly fine when I went to bed.  I puked about 4 more times then finally I thought I was safe to take my seizure meds.  Not so fast!!  About an hour and a half later I puked again.  So now what do I do?  Did the meds get completely in my system?  I took a couple of extras just to be safe.  I pretty much felt like garbage the whole rest of the day but at least I had stopped puking.  Then at about 8pm I took my regular dose and went to bed.  After about an hour and a half, I woke up and felt a big daddy seizure coming on.  I ran downstairs where Jamie was and the collapsed on the sofa shaking pretty violently for what seemed to last forever.  In all it was probably about 5 mins.  I eventually made my way back upstairs and went back to sleep.  I’m now starting my seizure clock over again.
  • Jan 18th, 2015: ouch!  Freak….  3 or 4 days ago I dropped my noon meds to .5.  Guess I better put it back at .75.
  • Apr 26th, 2015:  Dang, just over 3 months again.  I was getting ready to grab the keys and head out the door for an early morning church meeting when I felt one coming on fast.  I tried to ignore it but it broke through nonetheless.  The last few seizures have been unique.  It starts in my right hand like always, goes up my arm, then bends and shakes my entire upper torso to the right.  Including my head and eyes.  Then after a couple of minutes it subsides and I think I’m about done.  About that time I feel a sort of tingling at the base of my spine and it feels like electrical shocks going down my right leg.  My leg starts kicking uncontrollably and the seizure goes back up my spine until it gets my arm, head, hand,  and eyes all back into the game for a few more minutes of fun.  Fortunately Jamie was there like she always is.  I haven’t changed my meds since the last seizure.  The randomness of the seizures are kind of concerning.
  • Aug, 2015.  While getting ready for church.
  • Feb 15th, 2016.  Longest stretch so far but still kind of frustrating that they are so random.
  • March 30th, 2016.  Dropped my afternoon clonazepam by .25 on Mar 28th.  This seizure was the hardest one I have ever felt.  This is no longer fun…
  • April 3rd, 2016.  Had another one this morning.  One good thing was that it wasn’t as hard as the last one.  Just not sure why they are beginning to be more frequent now.
  • May 13th, 2016.  Early in the morning while camping with my boys.  Fortunately a friend was nearby.  All of my seizures are now what I call 2fers.  I’ll have one that is primarily contained to my upper torso.  Still hurts though.  Then after about a 30 second break another bigger one starts and includes my entire right side.
  • Jun 21st, 2016.  Another early one or a 2fer.  Had a crappy night, that seems to be a trigger.  Got up this morning around 7am and was studying the book of Job.  Then at 8am, before I took my morning meds, this one hit without warning.  I managed to make it upstairs before collapsing on my bed.  Fortunately Jamie was nearby.
  • Sep 8th, 2016:  Another 2fer.  In the morning, trouble sleeping during the night.  Took my morning meds about 15 min prior to the seizure.  That may have helped soften the blow.
  • Apr 19th, 2017: Well the longest streak yet.  I forgot to take my morning meds and around 5:30 pm it hit me…

Meds

  • 10 Apr 2017 – AM 750 keppra, .5 clonazepam, 200 lamictal.  PM: 750 keppra, .25 clonazepam, 200 lamictal.
  • 5 Mar 2017 – AM 750 keppra, .5 clonazepam, 200 lamictal. Noon: 0 clonazepam. PM: 750 keppra, .5 clonazepam, 200 lamictal.
  • 27 Feb 2017 – AM 750 keppra, .5 clonazepam, 200 lamictal. Noon: .5 clonazepam. PM: 750 keppra, .5 clonazepam, 200 lamictal.
  • 16 Feb 2017 – AM 1000 keppra, .5 clonazepam, 200 lamictal. Noon: .5 clonazepam. PM: 750 keppra, .5 clonazepam, 200 lamictal.
  • 9 Feb 2017 –  AM 1000 keppra, .5 clonazepam, 200 lamictal. Noon: .5 clonazepam. PM: 1000 keppra, .5 clonazepam, 200 lamictal.
  • 25 Jan 2017 – AM 1250 keppra, .5 clonazepam, 200 lamictal. Noon: .5 clonazepam. PM: 1000 keppra, .5 clonazepam, 200 lamictal.
  • 22 Jan 2017- Hand seized up and little mini seizures.  Increased keppra.  AM 1250 keppra, .5 clonazepam, 100 lamictal. Noon: .5 clonazepam. PM: 1000 keppra, .5 clonazepam, 100 lamictal.
  • 18 Jan 2017 – Decreased keppra again.  AM 1000 keppra, .5 clonazepam, 100 lamictal. Noon: .5 clonazepam. PM: 1000 keppra, .5 clonazepam, 100 lamictal.
  • 7 Jan 2017 – Started feeling seizures coming on. Had a few little seizures.  Upped my morning dose of keppra back to where it was.  AM 1250 keppra, .5 clonazepam, 100 lamictal. Noon: .5 clonazepam. PM: 1000 keppra, .5 clonazepam, 100 lamictal.
  • 5 Jan 2017 – AM 1000 keppra, .5 clonazepam, 100 lamictal. Noon: .5 clonazepam. PM: 1000 keppra, .5 clonazepam, 100 lamictal.
  • 28 Dec 2016 – AM 1250 keppra, .5 clonazepam, 100 lamictal. Noon: .5 clonazepam. PM: 1000 keppra, .5 clonazepam, 100 lamictal.
  • 21 Dec 2016 – AM: 1250 keppra, .5 clonazepam, 100 lamictal. Noon: .5 clonazepam. PM: 1250 keppra, .5 clonazepam, 100 lamictal.
  • AM: 2000 keppra, .5 clonazepam. Noon: .75 clonazepam.  PM: 2000 keppra, .5 clonazepam.
  • 7 Jun 15 – AM: 2000 keppra, .5 clonazepam. Noon: .75 clonazepam.  PM: 1750 keppra, .5 clonazepam.
  • 26 Feb 2016:  Doc wants me to try and get off clonazepam.  dropped my afternoon dose by .25.  AM: 2000 keppra, .5 clonazepam.  Noon: .5 clonazepam.  PM: 1500 keppra, .5 clonazepam.
  • 18 Mar 2016: 2000 keppra, .25 clonazepam.  Noon: .5 clonazepam.  PM: 1500 keppra, .5 clonazepam.
  • 28 Mar 2016: 2000 keppra, .25 clonazepam.  Noon: .25 clonazepam.  PM: 1500 keppra, .5 clonazepam.
  • 30 Mar 2016: 2000 keppra, .25 clonazepam.  Noon: .5 clonazepam.  PM: 1500 keppra, .5 clonazepam.
  • 25 Aug 2016: Had MRI.  No changes in the tumor.  Dr. recommended increasing my meds to help with seizures.  2000 keppra, .5 clonazepam.  Noon: .5 clonazepam.  PM: 2000 keppra, .5 clonazepam.
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