Medication levels

Ok so I know I need to get off some of my meds, especially keppra.

About mid August my doctor had me take a blood test to measure the keppra amounts in my blood.  Normal range is 5-30 micrograms/milliliter.  Mine came back at 74, more than twice the amount.

This raised a red flag but I have not had a seizure for about 4 weeks now.  I can’t remember the exact date but let’s just say August 1st for simplicity’s sake.

Starting on Tues, Aug 27th, my doc’s assistant called and asked me to start decreasing my keppra by 500 mg a day for one week.  I thought that was too much so we agreed on 250 for the week, the am dose.

Today, Sep 2nd, I’ll decrease my pm dose by another 250 mg for a week.

I’ve felt “twitches” in my right arm but I wouldn’t even call them seizures.  So far, so good.

Here’s the summary:

Aug 27th decreased keppra by 250 mg in am.  Total:  Mornings – 2250 mg keppra, 300 mg vimpat, .5 mg clonazepam. Noon – .5 mg clonazepam.  Evenings – 2500 mg keppra, 200 mg vimpat, .5 mg clonazepam.

Sep 2nd decreased keppra by 250 mg in pm.  Total:  Mornings – 2250 mg keppra, 300 mg vimpat, .5 mg clonazepam. Noon – .5 mg clonazepam.  Evenings – 2250 mg keppra, 200 mg vimpat, .5 mg clonazepam.

Sep 23rd decreased keppra by 250 mg in am.  Total:  Mornings – 2000 mg keppra, 300 mg vimpat, .5 mg clonazepam. Noon – .5 mg clonazepam.  Evenings – 2250 mg keppra, 200 mg vimpat, .5 mg clonazepam.

Sep 30th decreased keppra by 250 mg in pm.  Total:  Mornings – 2000 mg keppra, 300 mg vimpat, .5 mg clonazepam. Noon – .5 mg clonazepam.  Evenings – 2000 mg keppra, 200 mg vimpat, .5 mg clonazepam.

As of Oct 6th, 2013, still no seizures.  This is now about 2 months.

Nov 24th – In October I cut my clonazepam back and the pharmacy sent me a new brand of that generic drug (they do that sometimes).  I’m not sure if changing the brand or reducing the dose made a difference but I started having very small seizures.  Nothing major but enough to startle me and look for cover.  At around the beginning of November, Jamie found a bottle of my old clonazepam and I started taking that in the morning and the new clonazepam at night.

For most of November this has been my dosage: Total:  Mornings – 2000 mg keppra, 300 mg vimpat, .5 mg (old) clonazepam.  Evenings – 2000 mg keppra, 200 mg vimpat, .25 mg (new) clonazepam.  Notice I also cut out my noon dose and at some point I cut my evening dose to .25 mg but I can’t remember when exactly.

Nov 24th, I dropped my morning Vimpat by 100 mg.  Total:  Mornings – 2000 mg keppra, 200 mg vimpat, .5 mg (old) clonazepam.  Evenings – 2000 mg keppra, 200 mg vimpat, .25 mg (new) clonazepam.

Dec 23rd, decreased evening vimpat by 100 mg and increased evening clonazepam by .25 mg.  Total:  Mornings – 2000 mg keppra, 200 mg vimpat, .5 mg (old) clonazepam.  Evenings – 2000 mg keppra, 100 mg vimpat, .5 mg (new) clonazepam.

 

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3 Responses to Medication levels

  1. Elena says:

    And you are strong enough to enjoy a Labor Day walk with the fam. It was good seeing you and your cute family on the trail today.

  2. this is all so good, Ryan. Do you feel better? sounds like it. love you

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